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Advocating for Patients with Rare Diseases
By: Debra Y. Lewis, OD MBA This week we commemorate the fifth annual Rare Disease Day, a global campaign to raise awareness of the millions of people worldwide who suffer from rare diseases. In the...
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FDA Commemorates 30th Anniversary of the Orphan Drug Act
By: Gayatri R. Rao, M.D., J.D. When President Reagan signed the Orphan Drug Act 30 years ago, he enacted a critically important piece of health care legislation. The passage of this Act on January 4,...
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Rare Diseases in Children Pose Unique Challenges
By: Gayatri R. Rao, M.D., J.D. Rare diseases – those that affect fewer than 200,000 people in the United States but collectively affect 30 million Americans – are often chronic, progressive,...
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